Professional support provided to informal caregivers at home
literature review
DOI:
https://doi.org/10.14528/snr.2023.57.3.3165Keywords:
lay caregiving, empowerment, home care, the elderly, nursingAbstract
Introduction: The Older adults in their home environment often need support services of informal caregivers whose role is, therefore, becoming increasingly important in providing home care services. The aim of this literature review is to identify possible interventions to improve professional informal care services of the older adults.
Methods: A literature review in CINAHL, PubMed and PubMed Central® databases with integrative data analysis was undertaken. Qualitative analysis focused on the literature about interventions regarding nursing activities for the support provided to informal caregivers of older adults in their home environment or the home environment of their caregivers.
Results: The final analysis included ten original research articles that satisfied the inclusion criteria. In the analysis, nine code categories describing the needs of informal caregivers and the characteristics of detected supportive interventions for the support of informal caregivers were formulated.
Discussion and conclusion: Individualization, flexibility and promoting an active role of informal caregivers were recognized as important features of interventions to support informal caregivers in their home environment. Education and training of those who conduct interventions should also be considered.
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Angelo, J. K., Egan, R., & Reid, K. (2013). Essential knowledge for family caregivers: A qualitative study. International Journal of Palliative Nursing, 19(8), 383–388. https://doi.org/10.12968/ijpn.2013.19.8.383 PMid:23970294
Aoun, S. M., Grande, G., Howting, D., Deas, K., Toye, C., Troeung, Troeung, L. ... Erwing, G. (2015). The impact of the carer support needs assessment tool (CSNAT) in community palliative care using a stepped wedge cluster trial. PLoS ONE, 10(4), Article e0123012. https://doi.org/10.1371/journal.pone.0123012 PMid:25849348; PMCid:PMC4388632
Aoun, S. M., Toye, C., Slatyer, S., Robinson, A., & Beattie, E. (2018). A person-centred approach to family carer needs assessment and support in dementia community care in Western Australia. Health and Social Care in the Community, 26(4), e578–e586. https://doi.org/10.1111/hsc.12575 PMid:29635883
Badana, A. N. S., Haley, W. E., & Marino, V. R. (2020). Care demands and well-being of primary and secondary non-spousal caregivers of aging adults. Clinical Gerontologist, 43(5), 558–571. https://doi.org/10.1080/07317115.2020.1759748 PMid:32414302
Carlsson, M. E. (2014). A separate structured conversation with relatives of patients enrolled for advanced palliative home care: A care development project. Palliative and Supportive Care, 12(2), 107–115. https://doi.org/10.1017/S1478951512001022 PMid:23659694
Chan, H. Y. L., Ng, J. S. C., Chan, K. S., Ko, P. S., Leung, D. Y. P., Chan, C. W. H. … Lee, D. T. F. (2018). Effects of a nurseled post-discharge advance care planning programme for community-dwelling patients nearing the end of life and their family members: A randomised controlled trial. International Journal of Nursing Studies, 87, 26–33. https://doi.org/10.1016/j.ijnurstu.2018.07.008 PMid:30048916
da Silva, R. N., Brandão, M. A. G., & Ferreira, M. de A. (2020). Integrative Review as a method to generate or to test nursing theory. Nursing Science Quarterly, 33(3), 258–263. https://doi.org/10.1177/0894318420920602 PMid:32605480
Brito, T. R. P., Nunes, D. P., Duarte, Y. A. de O., & Lebrão, M. L. (2019). Social network and older people's functionality: Health, well-being, and aging (SABE) study evidences. Brazilian Journal of Epidemiology, 21(Suppl 2), Article e180003. https://doi.org/10.1590/1980-549720180003.SUPL.2 PMid:30726348
Dilworth-Anderson, P., Wallace Williams, S., & Cooper, T. (1999). Family Caregiving to elderly African Americans: Caregiver types and structures. The Journals of Gerontology, 54(4), 237–241. https://doi.org/10.1093/geronb/54B.4.S237 PMid:12382602
Drole, J., Meglič Črnak, A., Lebar, L., Nagode, M., Peternelj, A., Šonc A. & Toth M., (2015). Podpora samostojnemu bivanju v domačem okolju in dolgotrajna oskrba. Zaključni dokument projekta s predlogi ukrepov. Retrieved December 3, 2021 from http://staranje.si/sites/www.staranje.si/files/upload/images/m20_aha_si_dolgotrajna_oskrba.pdf
Ferré-Grau, C., Sevilla-Casado, M., Lleixá-Fortuño, M., Aparicio-Casals, M. R., Cid-Buera, D., Rodero-Sanchez, V., & Vives-Relats, C. (2014). Effectiveness of problem-solving technique in caring for family caregivers: A clinical trial study in an urban area of Catalonia (Spain). Journal of Clinical Nursing, 23(1/2), 288–295. https://doi.org/10.1111/jocn.12485 PMid:24313942
Garcés, J., Carretero, S., Ródenas, F., & Alemán, C. (2010). A review of programs to alleviate the burden of informal caregivers of dependent persons. Archives of Gerontology and Geriatrics, 50(3), 254–259. https://doi.org/10.1016/j.archger.2009.04.012 PMid:19481274
Gérain, P., & Zech, E. (2019). Informal caregiver burnout: Development of a theoretical framework to understand the impact of caregiving. Frontiers in Psychology, 10, Article 1748. https://doi.org/10.3389/fpsyg.2019.01748 PMid:31428015; PMCid:PMC6689954
Gusdal, A. K., Josefsson, K., Adolfsson, E. T., & Martin, L. (2016). registered nurses' perceptions about the situation of family caregivers to patients with heart failure: A focus group interview study. PLoS ONE, 11(8), Article e0160302. https://doi.org/10.1371/journal.pone.0160302 PMid:27505287; PMCid:PMC4978469
Horvat, M., Mihevc, B. P., & Kranjc, A. (2021). Navodilo za izvajanje, beleženje in obračunavanje storitev v patronažnem varstvu. Ljubljana: Nacionalni inštitut za javno zdravje.
Klemetti, S., Ingadottir, B., Katajisto, J., Lemonidou, C., Papastavrou, E., Valkeapää, K. ... Leino-Kilpi, H. (2018). Skills and practices of European orthopedic nurses in empowering patient education. Research and Theory for Nursing Practice, 32(4), 382–399. https://doi.org/10.1891/1541-6577.32.4.382 PMid:30567911
Montayre, J., & Montayre, J. (2017). Nursing work in long-term care: An integrative review. Journal of Gerontological Nursing, 43(11), 41–49. https://doi.org/10.3928/00989134-20170519-02 PMid:28556871
Nagode, M., & Srakar, A. (2015). Neformalni oskrbovalci: Kdo izvaja neformalno oskrbo, v kolikšnem obsegu in za koga. Retrieved January 3, 2022 from http://www.share‑slovenija.si/files/documents/prvi_rezultati_slovenija/Publikacija_IER_23.pdf
Nacionalni inštitut za javno zdravje. (2021). Zdravstveni statistični letopis Slovenije 2019. Ljubljana: Nacionalni inštitut za javno zdravje.
Page, M. J., McKenzie, J. E., Bossuyt, P. M., Boutron, I., Hoffmann, T. C., Mulrow, C. D. ... Moher, D. (2021). The PRISMA 2020 statement: An updated guideline for reporting systematic reviews. BMJ 372, Article n7. https://doi.org/10.1136/bmj.n71 PMid:33782057; PMCid:PMC8005924
Pesut, B., Hooper, B. P., Robinson, C., Bottorff, J., Sawatzky, R., & Dalhuisen, M. (2015). Feasibility of a rural palliative supportive service. Rural and Remote Health, 15(2), Article 3116, 1–16. https://doi.org/10.22605/RRH3116 PMid:25939666
Polit, F. D., & Beck, T. C. (2018). Essentials of Nursing Research: Appraising Evidence for Nursing Practice (9th ed., pp. 20–40). Philadelphia: Wolters Kluwer.
Rutherford, A. C., & Bu, F. (2018). Issues with the measurement of informal care in social surveys: Evidence from the English longitudinal study of ageing. Ageing and Society, 38(12), 2541–2559. https://doi.org/10.1017/S0144686X17000757
Slatyer, S., Aoun, S. M., Hill, K. D., Walsh, D., Whitty, D., & Toye, C. (2019). Caregivers' experiences of a home support program after the hospital discharge of an older family member: A qualitative analysis. BMC Health Services Research, 19, Article 220. https://doi.org/10.1186/s12913-019-4042-0 PMid:30971236; PMCid:PMC6458630
Stringfellow, A. (2018). What is a primary caregiver. Retrieved December 16, 2021 from https://www.seniorlink.com/blog/what-is-a-primary-caregiver
Sudhinaraset, M., Ingram, M., Lofthouse, H. K., & Montagu, D. (2013). What is the role of informal healthcare providers in developing countries: A systematic review. PLoS ONE, 8(2), Article e54978, 1–12. https://doi.org/10.1371/journal.pone.0054978 PMid:23405101; PMCid:PMC3566158
Toye, C., Parsons, R., Slatyer, S., Aoun, S. M., Moorin, R., Osseiran-Moisson, R., & Hill, K. D. (2016). Outcomes for family carers of a nurse-delivered hospital discharge intervention for older people (the Further Enabling Care at Home Program): Single blind randomised controlled trial. International Journal of Nursing Studies, 64, 32–41. https://doi.org/10.1016/j.ijnurstu.2016.09.012 PMid:27684320
Vaismoradi, M., Turunen, H., & Bondas, T. (2013). Content analysis and thematic analysis: Implications for conducting a qualitative descriptive study. Nursing & Health Sciences, 15(3), https://doi.org/10.1111/nhs.12048 PMid:23480423
Verbakel, E., Tamlagsrønning, S., Winstone, L., Fjaer, E. L., & Eikemo, T. A. (2017). Informal care in Europe: Findings from the European Social Survey (2014) special module on the social determinants of health. European Journal of Public Health, 27(1), 90–95. https://doi.org/10.1093/eurpub/ckw229 PMid:28355645
Ware, O. D., & Cagle, J. G. (2018). Informal caregiving networks for hospice patients with cancer and their impact on outcomes: A brief report. American Journal of Hospice & Palliative Medicine, 36(3), 235–240. https://doi.org/10.1177/1049909118792011 PMid:30064239
Wawrziczny, E., Berna, G., Ducharme, F., Kergoat, M. J., Pasquier, F., & Antoine, P. (2017). Modeling the distress of spousal caregivers of people with dementia. Journal of Alzheimer's Disease, 55(2), 703–716. https://doi.org/10.3233/JAD-160558 PMid:27716667
Zakon o dolgotrajni oskrbi /ZDOsk/ (2021) Uradni list RS, št. 196/21 (9. 12. 2021). Retrieved from http://www.pisrs.si/Pis.web/pregledPredpisa?id=ZAKO7621
Zigante, V. (2018). Informal care in Europe: Exploring formalisation, availability and quality. Evropska komisija, Generalni direktorat za zaposlovanje,socialne zadeve in vključevanje: Publications Office. https://data.europa.eu/doi/10.2767/78836
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