Genomsko podprta zdravstvena nega

prihodnost zdravstvene nege

Avtorji

  • Arja Halkoaho Tampere University of Applied Sciences, Kuntokatu 3, 33520 Tampere, Finland
  • Nina Smolander Tampere University of Applied Sciences, Kuntokatu 3, 33520 Tampere, Finland
  • Maria Caples University College Cork, College Road, Cork T12 AK54, Ireland
  • Angelo Dante Universita Degli Studi Dell'Aquila, Palazzo Camponeschi, piazza Santa Margherita 2, 67100 L'Aquila, Italy
  • Cristina Petrucci Universita Degli Studi Dell'Aquila, Palazzo Camponeschi, piazza Santa Margherita 2, 67100 L'Aquila, Italy
  • Marija Milavec Kapun Univerza v Ljubljani, Zdravstvena fakulteta, Zdravstvena pot 5, 1000 Ljubljana, Slovenija https://orcid.org/0000-0001-5231-3795

DOI:

https://doi.org/10.14528/snr.2023.57.1.3223

Ključne besede:

genomsko podprta, zdravstvena nega, genomske informacije, odločitve

Prenosi

Podatki o prenosih še niso na voljo.

Metrike

Nalaganej metrik....

Literatura

Appelbaum, P. (2017). Models of informed consent for genomic sequencing. European Neuropsychopharmacology, 27, S477. https://doi.org/10.1016/j.euroneuro.2016.09.559

Calzone, K. A., Kirk, M., Tonkin, E., Badzek, L., Benjamin, C., & Middleton, A. (2018a). Increasing nursing capacity in genomics: Overview of existing global genomics resources. Nurse Education Today, 69, 53–59. https://doi.org/10.1016/j.nedt.2018.06.032 PMid:30007148; PMCid:PMC6112149

Calzone, K. A., Kirk, M., Tonkin, E., Badzek, L., Benjamin, C., & Middleton, A. (2018b). The global landscape of nursing and genomics. Journal of Nursing Scholarship, 50(3), 249–256. https://doi.org/10.1111/jnu.12380 PMid:29608246; PMCid:PMC5959047

Denny, J. C., & Collins, F. S. (2021). Precision medicine in 2030: Seven ways to transform healthcare. Cell, 184(6), 1415–1419. https://doi.org/10.1016/j.cell.2021.01.015 PMid:33740447; PMCid:PMC9616629

European Commission. (2022). European “1+ Million Genomes” Initiative. Retrieved November 23, 2022, from https://digitalstrategy.ec.europa.eu/en/policies/1-million-genomes

Halkoaho, A., Smolander, N., Laaksonen, M., Huhtinen, E., Hegarty, J., Caples, M. … Lancia, L. (2023). GenoNurse – project: An international partnership to enhance genetic and genomic competence in European nursing students. In Z. Kubincova, A. Melonio, & D. Duraes et al. (Eds.) & L. Lancia (Eds.), MIS4TEL 2022: Methodologies and Intelligent Systems for Technology Enhanced Learning, Workshops, 12th International Conference (pp. 152–159). Cham: Springer International Publishing. https://doi.org/10.1007/978-3-031-20257-5_16

Harrington, L. (2021). Precision nursing. AACN Advanced Critical Care, 32(3), 243–246. https://doi.org/10.4037/AACNACC2021471 PMid:34490440

Hurle, B., Citrin, T., Jenkins, J. F., Kaphingst, K. A., Lamb, N., Roseman, J. E., & Bonham, V. L. (2013). What does it mean to be genomically literate: National human genome research institute meeting report. Genetics in Medicine, 15(8), 658–663. https://doi.org/10.1038/gim.2013.14 PMid:23448722; PMCid:PMC4115323

International Council of Nurses. (2021). The ICN code of ethics for nurses. Geneva: International Council of Nurses. Retrieved from https://www.icn.ch/system/files/2021-10/ICN_Code-of-Ethics_EN_Web_0.pdf

Laaksonen, M., Airikkala, E., & Halkoaho, A. (2022). The development of education of public health nurses for applying genomics in preventive health care. Frontiers in Genetics, 13(April), Article 849232. https://doi.org/10.3389/fgene.2022.849232 PMid:35464840; PMCid:PMC9024403

Lechasseur, K., Caux, C., Dollé, S., & Legault, A. (2018). Ethical competence: An integrative review. Nursing Ethics, 25(6), 694–706. https://doi.org/10.1177/0969733016667773 PMid:27694548

Martins, M. F., Murry, L. T., Telford, L., & Moriarty, F. (2022). Direct-to-consumer genetic testing: An updated systematic review of healthcare professionals' knowledge and views, and ethical and legal concerns. European Journal of Human Genetics, 30, 1331–1343. https://doi.org/10.1038/s41431-022-01205-8 PMid:36220915; PMCid:PMC9553629

Rayes, N., Bowen, D. J., Coffin, T., Nebgen, D., Peterson, C., Munsell, M. F. … Lu, K. H. (2019). MAGENTA (Making Genetic testing accessible): A prospective randomized controlled trial comparing online genetic education and telephone genetic counseling for hereditary cancer genetic testing. BMC Cancer, 19(1), 1–8. https://doi.org/10.1186/s12885-019-5868-x PMid:31266460; PMCid:PMC6604336

Skirton, H., Barnoy, S., Erdem, Y., Ingvoldstad, C., Pestoff, R., Teksen, F., & Williams, J. (2012). Suggested components of the curriculum for nurses and midwives to enable them to develop essential knowledge and skills in genetics. Journal of Community Genetics, 3(4), 323–329. https://doi.org/10.1007/s12687-012-0098-9 PMid:22569766; PMCid:PMC3461229

Whitley, K. V, Tueller, J. A., & Weber, K. S. (2020). Genomics education in the era of personal genomics: Academic, professional, and public considerations. International Journal of Molecular Sciences, 21(3), Article 768. https://doi.org/10.3390/ijms21030768 PMid:31991576; PMCid:PMC7037382

Wright, H., Zhao, L., Birks, M., & Mills, J. (2019). Genomic literacy of registered nurses and midwives in Australia: A crosssectional survey. Journal of Nursing Scholarship, 51(1), 40–49. https://doi.org/10.1111/jnu.12440 PMid:30367730

Objavljeno

2023-03-19

Kako citirati

Halkoaho, A., Smolander, N. ., Caples, M. ., Dante, A. ., Petrucci, C., & Milavec Kapun, M. (2023). Genomsko podprta zdravstvena nega: prihodnost zdravstvene nege. Obzornik Zdravstvene Nege, 57(1), 4–7. https://doi.org/10.14528/snr.2023.57.1.3223

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