Vključevanje staršev v zdravstveno oskrbo hospitaliziranega otroka z rakom
model v družino usmerjena zdravstvena oskrba
DOI:
https://doi.org/10.14528/snr.2025.59.4.3192Ključne besede:
starši, hospitaliziran otrok, zdravstvena nega, hospitalizacija, otrok, rakPovzetek
Uvod: Uspešna implementacija koncepta družini usmerjene zdravstvene oskrbe v klinično okolje je velik izziv za multidisciplinarni tim pri zdravljenju otrok z rakom in njihovih družin. Namen raziskave je bil preučiti percepcijo in prakso tima v slovenskem okolju.
Metode: Raziskava je bila izvedena z anketnim vprašalnikom o oskrbi, osredotočeni na družino v pediatrični onkologiji (angl. Family-Centered Care Questionnaire-Revised). Vzorec je vključeval 80 članov multidisciplinarnega tima, od katerih je 63 vrnilo izpolnjene anketne vprašalnike. Podatki so bili analizirani s programom SPSS, uporabljeni so bili deskriptivni in interferenčni statistični postopki, vključno z Mann-Whitneyjevim U-testom in Kruskal-Wallisovim testom.
Rezultati: Raziskava je pokazala, da se multidisciplinarni tim, ki obravnava otroke z rakom, v veliki meri zaveda pomena oskrbe, osredinjene na otroka in družino (x = 2,28, s = 0,550). Obstajajo odstopanja v zavedanju pomena skrbi za celotno družino (x = 2,60, s = 0,670). Razlike so bile ugotovljene glede vključevanja staršev v oskrbo, predvsem med strokovnjaki z različnimi delovnimi izkušnjami (p = 0,024) ter med negovalnimi timi intenzivne terapije in onkologije (p < 0,001).
Diskusija in zaključek: Moramo si prizadevati za kakovostno sodobno zdravstveno oskrbo, ki zadostuje potrebam otroka in staršem ter vodi do boljših rezultatov zdravljenja, krajših hospitalizacij, večjega zadovoljstva in nižjih stroškov. To razumevanje mora biti vključeno v organizacijo, oblikovanje smernic, postopke ter v vsak stik strokovnjakov z družino.
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